Wednesday, September 16, 2009
Thursday, September 3, 2009
Important information for MS sufferers from an MS sufferer
I have suffered for over 12 years with MS and recently needed to retire. I am currently on Tysabri to control the progression of my MS. I’m diagnosed with Primary Progressive now and was slowly giving up my life to MS. Recently my doctor prescribed a drug called 4-Aminopyridine (4-AP for short). This drug has given me a great deal of my life back.
I suffered with a great deal of leg spasticity, balance problems and weakness. I was also always fatigued and was extremely sensitive to heat. I was a shut in and moody all the time. Now the good news, 4-AP started working after only 3-4 dosages. It was a miracle in my opinion.
It works by improving the signals to the muscles and also reduced my fatigue and heat sensitivity. My balance improved greatly and I started being able to easily move again. 4-AP is not new but getting some attention now because a sustained release version is being tested and released shortly under the name Fampridine by a large pharmaceutical company. For any MS sufferer there is no need to wait because it is immediately available with a doctors' prescription in the 4-AP immediate release form.
There is good science behind how this drug works and it has been used for years on MS patients as well as patients with spinal cord injuries. It helps to reconnect the nerves' communication and greatly improves their nerve sensitivity and conductivity. This drug has been used for over 20 years. I have recommended it to every MS friend I know and 100% of the ones who have tried it had major improvement with it and now swear by it.
I have also been able to stop taking Baclofen and my spasticity and walking speed measured by my physical therapist has improved 25%. Stopping Baclofen has also helped my fatigue and tired symptoms caused as a side effect of it. Neurological tests done by my neurologist have also improved greatly. Many MS sufferers take so much Baclofen they need to take Provigil to help them stay awake. Once you're on 4-AP you may not need or can reduce these types of drugs.
I started taking a second drug called LDN (Low Dose Naltrexone) recently and have improved even more. This drug took about 9 days to start seeing an improvement. I can now do things I have not been able to do for years.
These drugs are not cures. These medications will simply and effectively improve your symptoms and improve your quality of life. MS is something you and I live with every day. I’m happy to convey my experience to anyone interested. These 2 drugs are easy to swallow pills and are both relatively cheap (about $1 per day each).
Please take control of your life and your symptoms and get your doctor to prescribe at least 4-AP as soon as you can. You should know within 3-4 dosages if it is working for you and as you slowly increase the dosage as prescribed you will also be telling all your MS friends to take this drug as soon as possible. You may need to persuade your doctors to prescribe them because there are no large pharmaceutical companies behind them. Some doctors will ask you to wait for Fampridine. This is easy for a doctor who does not live with MS to ask, but relief is available immediately so there's no need to wait.
Here is how I measure my improvements and quality of life on these drugs. I’m now 54 and compared to last summer my bad days now are what used to be my good days a year ago. My good days now are so good and full of activity that I am constantly on the go and they far outnumber my bad days. I can now tolerate the sun on a hot day. I work out 2 times a week with no pain. What used to be impossible is now easier and I can do it now. What was hard to do is now easy. My physical envelope has doubled or tripled in size. I find the more I can do the better mental attitude I get from it. I’m now really building core muscle and strength.
Do I still have MS? Yes, but now if you ask my family they will tell you Dad's doing great and we have Dad back. He wants to participate now with the family. I travel now and I want to get out of the house. It has really helped my marriage. These drugs are unfortunately unpatentable and therefore large pharmaceutical companies have no interest in them as well as most doctors know little about them. I find this almost criminal that a drug like this is not used more and more widely known about. This means information must be spread by us, the MS sufferers, until the MS society or government no longer can ignore this type of drug.
I urge you to get better fast and start enjoying your life more. For more information search them on the web (LDN) (4AP) and read lots of positive information that other MS patients are saying worldwide. If you wish more communication or have more questions you can contact me through the good people at Pacific Compounds Pharmacy.
It is now up to you to get back your life.
R.M. - Hillsboro
I suffered with a great deal of leg spasticity, balance problems and weakness. I was also always fatigued and was extremely sensitive to heat. I was a shut in and moody all the time. Now the good news, 4-AP started working after only 3-4 dosages. It was a miracle in my opinion.
It works by improving the signals to the muscles and also reduced my fatigue and heat sensitivity. My balance improved greatly and I started being able to easily move again. 4-AP is not new but getting some attention now because a sustained release version is being tested and released shortly under the name Fampridine by a large pharmaceutical company. For any MS sufferer there is no need to wait because it is immediately available with a doctors' prescription in the 4-AP immediate release form.
There is good science behind how this drug works and it has been used for years on MS patients as well as patients with spinal cord injuries. It helps to reconnect the nerves' communication and greatly improves their nerve sensitivity and conductivity. This drug has been used for over 20 years. I have recommended it to every MS friend I know and 100% of the ones who have tried it had major improvement with it and now swear by it.
I have also been able to stop taking Baclofen and my spasticity and walking speed measured by my physical therapist has improved 25%. Stopping Baclofen has also helped my fatigue and tired symptoms caused as a side effect of it. Neurological tests done by my neurologist have also improved greatly. Many MS sufferers take so much Baclofen they need to take Provigil to help them stay awake. Once you're on 4-AP you may not need or can reduce these types of drugs.
I started taking a second drug called LDN (Low Dose Naltrexone) recently and have improved even more. This drug took about 9 days to start seeing an improvement. I can now do things I have not been able to do for years.
These drugs are not cures. These medications will simply and effectively improve your symptoms and improve your quality of life. MS is something you and I live with every day. I’m happy to convey my experience to anyone interested. These 2 drugs are easy to swallow pills and are both relatively cheap (about $1 per day each).
Please take control of your life and your symptoms and get your doctor to prescribe at least 4-AP as soon as you can. You should know within 3-4 dosages if it is working for you and as you slowly increase the dosage as prescribed you will also be telling all your MS friends to take this drug as soon as possible. You may need to persuade your doctors to prescribe them because there are no large pharmaceutical companies behind them. Some doctors will ask you to wait for Fampridine. This is easy for a doctor who does not live with MS to ask, but relief is available immediately so there's no need to wait.
Here is how I measure my improvements and quality of life on these drugs. I’m now 54 and compared to last summer my bad days now are what used to be my good days a year ago. My good days now are so good and full of activity that I am constantly on the go and they far outnumber my bad days. I can now tolerate the sun on a hot day. I work out 2 times a week with no pain. What used to be impossible is now easier and I can do it now. What was hard to do is now easy. My physical envelope has doubled or tripled in size. I find the more I can do the better mental attitude I get from it. I’m now really building core muscle and strength.
Do I still have MS? Yes, but now if you ask my family they will tell you Dad's doing great and we have Dad back. He wants to participate now with the family. I travel now and I want to get out of the house. It has really helped my marriage. These drugs are unfortunately unpatentable and therefore large pharmaceutical companies have no interest in them as well as most doctors know little about them. I find this almost criminal that a drug like this is not used more and more widely known about. This means information must be spread by us, the MS sufferers, until the MS society or government no longer can ignore this type of drug.
I urge you to get better fast and start enjoying your life more. For more information search them on the web (LDN) (4AP) and read lots of positive information that other MS patients are saying worldwide. If you wish more communication or have more questions you can contact me through the good people at Pacific Compounds Pharmacy.
It is now up to you to get back your life.
R.M. - Hillsboro
Wednesday, September 2, 2009
Fibromyalgia - Seven Steps Out Of Pain
This seminar on Fibromyalgia and Chronic Pain will be presented by Dr. Arcoma Gonzalez on Wednesday, September 16th at 7pm at Pacific Compounds Pharmacy. She will give us an hour of information and then will stay to answer any questions you may have. Please come join us and learn how to get rid of the pain!
Do you suffer from chronic pain in many places all over your body? If you have pain, fatigue, fibrofog, restlessness, poor sleep, hypersensitivities to smells, allergies, and weight concerns, then this one hour presentation will answer a lot of questions about how and why these symptoms occur. There are many theories as to the causes of fibromyalgia, but anyone who suffers with these symptoms has an entirely different view of the disease than the researchers. Dr. Gonzalez Lambert will shed some light on the body systems affected, the ways to treat this ever changing condition, and useful tips on how to keep your insurance coverage. This one hour presentation is practical, entertaining, and informative so that you can get back to living your life.
Cost is $10.00 per seat if reserved ahead, or $15.00 at the door. You can call and make reservations at
503-640-3080. We look forward to seeing you there!
Do you suffer from chronic pain in many places all over your body? If you have pain, fatigue, fibrofog, restlessness, poor sleep, hypersensitivities to smells, allergies, and weight concerns, then this one hour presentation will answer a lot of questions about how and why these symptoms occur. There are many theories as to the causes of fibromyalgia, but anyone who suffers with these symptoms has an entirely different view of the disease than the researchers. Dr. Gonzalez Lambert will shed some light on the body systems affected, the ways to treat this ever changing condition, and useful tips on how to keep your insurance coverage. This one hour presentation is practical, entertaining, and informative so that you can get back to living your life.
Cost is $10.00 per seat if reserved ahead, or $15.00 at the door. You can call and make reservations at
503-640-3080. We look forward to seeing you there!
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